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Booklist: Invisible Disabilities in Horror for YA Readers

Disability is one way that monsters are created in the horror genre. Monstrosity is usually expressed visually, though, especially in the classic texts– think The Phantom of the Opera, the Hunchback of Notre Dame, Mr. Hyde of Jekyll and Hyde fame. Or if we don’t actually see the disfigurement, many monsters, from the Phantom of the Opera to Michael Myers, are masked.  Physically marking a character is a way of representing that person as the “other”; abnormal in some way, which is disturbing to those who see themselves as “normal”. It is a problematic representation of disability in literature, and I think we see it more strongly in the horror genre because for so many people it is disturbing and scary to face anyone who isn’t like them. Mary Shelley’s description of Frankenstein’s monster and his friendship with the little blind girl is a perfect example of how dependent we are on sight as a cue to decide who is a monster and who is not.

 

What about the disabilities that aren’t immediately visible? Yes, those do very much exist, and shape personality. Putting aside the curse of paranormal abilities, like the”Typhoid Mary” powers Jenny Morton displays in Jenny Pox, disabilities and disorders that can’t be seen do appear in horror, especially as victims. What’s really neat to see is when a character with an invisible disability flips that trope over.  But honestly, as someone who has epilepsy, I can tell you that ANY recognition of my disability that appears in fiction, no matter how problematic, has always been welcome (even when I hate the depiction) because it means I’ve been seen. And it meant even more to me when I was a teen, because there really was absolutely nothing at all. Here are five books you could hand to a teen dealing with an invisible disability.

  A Head Full of Ghosts by Paul Tremblay

This is not technically a YA novel, but it is told from the point of view of a young woman, with extensive flashbacks to her childhood, and the central character is a teen dealing with… we don’t know exactly what. Teenaged Marjorie might be possessed, or she might be developing schizophrenia. It is actually possible to meet someone with schizophrenia and not know that’s the case. And as far as I remember, schizophrenia is not mentioned outright, even though Marjorie is under the care of a psychiatrist at the beginning of the story. This is actually one of the more visual depictions of an invisible disability, as Marjorie’s actions also suggest that she might be possessed, which lands her family on a reality television show.

  A Great and Terrible Beauty by Libba Bray

This is the first book in the Gemma Doyle trilogy. It’s almost an trope for a British girl who grows up in India in the late 1800s to be sent to England for further education after her mother dies, usually at a boarding school, and that’s what happens to Gemma, who is also clairvoyant. She and her friends discover an entrace to magical realms where they can have their hearts’ desires– darker than it sounds. One of Gemma’s friends, Pippa, has epilepsy, and during a seizure travels to the magical realms. Pippa must keep her epilepsy a secret, so she won’t be discovered to be “damaged goods” before she can be married. Gemma follows her, but Pippa has found true love there and refuses to return to a life of illness. Pippa’s story brought tears to my eyes. I found Bray’s straightforward descriptions of Pippa’s seizures to be accurate, although you should never put a wooden spoon in anyone’s mouth.

 The Dark Between by Sonia Gensler

I’ve just finished this one, and I really recommend it. It also takes place near the turn of the 20th century, when spiritualism was in vogue. Three teenagers brought together by coincidence turn out to have more in common than they expected come across some mysterious murders that might have something to do with electrical experiments to enhance the brain with psychic powers. Kate, the youngest, is an impoverished orphan who loses her job as a “spirit guide” for a medium when the medium is exposed by a skeptic. Asher is an American teen at loose ends, traveling alone, who is considering attending Cambridge. Elsie is a dreamy, beautiful girl who has been sent away by her parents, whose mind is clouded by drugs she takes to control her epilepsy. Elsie’s seizures began after she was struck by lightning, and she can see visions of the dead during them. The attitudes Elsie has faced and expects to face after the secret of her epilepsy is exposed, and her drugged feelings, make her a more sympathetic character than you would expect, as she is not especially thoughtful or rational. Elsie is no Beth March, shy and pure; she’s drawn as a complex character, a real girl with burgeoning sexuality and intense emotions who makes bad decisions that make you want to smack her. Score one for Sonia Gensler in her development of a character with epilepsy who has more than one dimension.
 Dark Muse by David Simms

Muddy, Poe, Otis, and Corey are The Accidentals, a band of misfits. All four love music, and all four have problems they have to face. Muddy is dyslexic, Poe is legally blind and has a difficult home situation, Otis has brittle bones, and Corey has a checkered past and is a year behind in school. When Muddy’s older brother Zack, a troubled and gifted guitarist, disappears at “the crossroads”, Muddy and the rest of The Accidentals decide to cross over to an alternate reality where music has real power, and find him. Author David Simms has worked with many special education students, and draws realistic, sympathetic portraits of his characters. It’s cool to see ordinary, music-loving kids with disabilities as the heroes of the story.

 

 Cryer’s Cross by Lisa McMann

Sixteen year old Kendall has obsessive compulsive disorder. She’s been able to function in a carefully constructed world, and that begins to disintegrate when a girl disappears, and then, shortly after that, her boyfriend. Did Kendall have something to do with the disappearances? Or will her obsessiveness lead her to become a victim? Kendall is a very sympathetic character struggling with a difficult situation that is complicated by her obsessive compulsive disorder.

 

 

 

 

 

Posted on July 4, 2015 by , Reply

Women in Horror Month: David Simms Interviews Lauren Oliver

 

And now, for Women in Horror Month,  reviewer David Simms interviews Lauren Oliver.       Lauren  is the author of many YA novels, including the Delirium trilogy, Before I Fall,  and Panic (soon to be a movie). She has also written for adults (Rooms) and children( The Spindlers and Liesl & Po). Her newest book, the YA thriller Vanishing Girls, will be released in March of 2015.

Lauren enjoys reading, cooking, traveling, dancing, running, and making up weird songs. She divides her time between Brooklyn, upstate New York, and various hotel rooms.

 

Dave: In Vanishing Girls,  mental health is a major issue.  Thank you for delving into this. As a special education teacher/therapist for teens, I don’t see enough writers tackling it. Do you think it’s something teens (both sexes) need to be aware of?

Lauren: Well, yes, sure–I think everyone of almost every age should be educated about various kinds of mental illnesses and, more generally speaking, about the diversity of human experience. It’s funny, I never set out to write about mental health issues or about “difficult” topics; I simply write what I know. And I know people with mental health issues, and addiction disorders, etc. It’s part of the human condition.

 

Dave: Following this, most writers I’ve met, from the biggest in the world down to the scribblers and wishers, have demons they have battled. You really hit on some tough points for teens. Do you feel that embracing your past helps you as a writer and subsequently helps your readers?

Lauren: Yes, absolutely–writers are always on some level writing about their own experiences, things they’ve known, perceived, thought about, dreamed of. The same is true of me. I don’t consciously choose to broach difficult topics or to show teens struggling with difficult scenarios; that’s a reflection of my memories and also my understanding of the emotional content of adolescence, how tough and alienating it can be.

 

Dave: At a major conference recently, I listened to a panel of “adult” writers who are jumping into the YA fray. They were saying that they can knock out a YA novel in full within 6 weeks.  As a published YA author myself, I was frustrated to see YA treated dismissively. Your take?

Lauren: Well, I mean, I don’t know the context of that comment; YA books can be shorter than adult books, which obviously influences how long they take to write. But I would venture to wonder whether the books that authors brag about spending less time and attention on become successful efforts, whether they attract critical praise or the devotion and care of readers? I mean, anyone can write a kind of so-so book, for any audience, in any amount of time. Good books require attention and editing and long term care, for the most part. Then again, some writers are simply fast.

 

Dave: The sisters in Vanishing Girls display the fragility of sibling relationships and rivalry as well as family dynamics. Do you receive a lot of communication from readers who are seeking guidance?
Lauren: I’ve always received a lot of messages from people who empathize with my books and their main characters, yes. Some of them are seeking guidance and direction but most of them just want to reach out–they find the guidance, I think, in the books themselves.

 

Dave: The amusement park setting of Vanishing Girls is just great. Is this something straight out of your past?

Lauren: Ha, no. I wish! I was a lifeguard in high school. But I like amusement parks as much as the next girl.

 

Dave: What are your plans for your next book? Any issues you’d love to tackle or think need to be that haven’t been brought to the spotlight? Is there anything off limits to you?

Lauren: I don’t approach books by identifying issues I want to tackle, although all of my books do end up tackling some heavy issues because that has been my experience of the world and one of the purposes, I think, of writing books in the first place. My next standalone YA, Broken Things, will therefore deal with guilt and criminalization and also with the unhealthy dynamics that can sometimes develop between female friends–but the idea came to me not through its themes but because I became inspired by a real-life criminal case.

 

Dave:  In terms of research, planning, etc., what’s your favorite part of the writing process before sitting down to immerse yourself? What helps you write?
Lauren: Oh, the writing always comes first, the planning and research later, even though I know that sounds weird. I always “write my way in,” meaning that I just sit down for 15-20K words and feel my way through the language into the characters and the world. Then I sit down and think critically about an outline, about the central conflicts and antagonists, etc.

 

Dave: As a psychologist and therapist/teacher, I often ask other professionals how their childhood impacted career choices and how they go about helping the next generation. Teens today face many new issues and new slants on the ones we grappled with. What role do you believe teachers/guidance counselors have today?
Lauren: That’s a tremendously difficult question for me to answer. I can’t imagine the kind of pressures kids are facing today, but I can venture to guess that they would need the influence of guidance, care, and attention now more than ever, and in particular that they would find great value in face-to-face communication and conversation.

 

Dave:  Do you meet your readers mostly via social media, school/library/bookstore visits, or at conventions?

Lauren: All of the above!

 

Dave: What’s the best piece of writing advice you’ve ever received and who gave it?

Lauren: My dad–he taught me to write every day.

 

Dave: What/who are your influences, past and present? When did you know you had to write for a living?

Lauren: I’ve always known I had to write, but I never at any point thought it had to be “for a living” (either then or now!). At a certain point I started writing novels, and at a certain point after that I decided to try and get them published, and at a certain point after that they did get published. But the publishing is only incidentally related to my great love of writing, in a way, which is an intrinsic part of who I am. As for influences, there are simply too many to list.

 

Dave: Monster Librarian is spotlighting women authors next month (and should EVERY month). I see more females reading in my schools than males, yet while when I was growing up, the trend appeared to be reversed. Why do you think this might be happening?

Lauren: That’s very surprising, actually–when I was a kid, I felt the girls read more than the boys, but then again, that is likely because my sample was quite skewed. In any case, I’m thrilled to hear that girls as well as boys are reading and hope that the continued efflorescence of fabulous literature for teens and children will just encourage more and more kids to read.

 

Thank you, Lauren, for answering our questions!

 

 

Posted on February 12, 2015 by , Reply

Teen Read Week: Guest Post by David Simms– “Teens with Disabilities and the Power of Music”

 


David Simms is the author of Dark Muse, a dark fantasy for young adults released earlier this year. Dark Muse focuses on the journeys of four friends with a variety of disabilities, brought together by their love of music, as they search for the protagonist’s older brother in a fantastic realm where music is alive.

He’s also a special education teacher, a musician who belongs to the Killer Thriller Band, and a reviewer for MonsterLibrarian.  For Teen Read Week, I asked David if he would share his thoughts on writing about disability in YA fiction and the power of music to change teens’ lives.

For more on representations of disability in YA fiction, check out the blog Disability in KidLit (link).

 

Teens with Disabilities and the Power of Music 

By David Simms

My first novel, Dark Muse, was released a few months ago, realizing a lifelong dream. It’s exciting that a publisher enjoyed it enough to sign me, and receiving high praise from both colleagues I respect, and, most importantly, from my readers, is enough to keep me smiling for years. I see that smile reflected in the eyes of students I work with every day, who remind me why I wrote the tale in the first place.

 

If someone had told me a decade ago that my first novel would be young adult, I would’ve laughed. However, marrying music and kids with disabilities seemed to happen by itself. Writing from the misfit’s point of view wasn’t exactly rocket science for me. I was a small kid until almost 17 and only felt at home when playing music with my friends, much like Muddy, Poe, Corey, and Otis, the teens who form the Accidentals. The Accidentals bond together and find resiliency, as they often push each other to bring out the best they have, and many times, that strength displays itself in music.

 

Dark Muse centers around the mythology of “the crossroads”, an old blues legend that a musician playing at the crossroads of Memphis would summon the devil and could make a deal for fame and fortune, but I wanted to change it up a bit. What if by playing your heart out there, you’d be transported to a world where music came alive, where the inspiration for many classic rock songs still lived? Creatures threaten the band of four in a gauntlet which includes a “stairway” to somewhere, “smoke” on the water, and an “iron man.”

 

I noticed that I’d never heard of a novel with teens with disabilities as protagonists before, at least none without using it as a novelty device. I wanted to celebrate my students (many of whom now make more money than me)! After teaching for special education for several years, I had volumes of experience to draw from, and hundreds of great kids from which to draw characters. All of the teens in Dark Muse stem from past students, of all backgrounds and musical persuasions. Muddy, Poe, Corey, and Otis fight through their demons, which include disabilities or their place in life. For example, Poe is nearly blind and Otis, the drummer extraordinaire, couldn’t be more fragile with brittle bone syndrome. Yet when they’re in the land of the crossroads, their disabilities fade. Instead of using it as an easy fix, though, each learns how to tap into inner strength to rise above adversity in our world. Muddy, the protagonist, has a father and brother who are technically more talented than him, yet his drive and purpose propel him much further than both. Dark Muse is just as much about the teens fighting daily just to survive in a school setting as it is a dark, mythological adventure.
Unfortunately, many public schools still have not picked up on the fact that not everyone learns–and tests—in the same way. “Respect differences and tolerate all – except when it comes to test scores” seems to be the mantra of many in government. Thankfully, many teachers and some administrators, like mine, understand the difference. I think that more teens, those with disabilities and those without, would flock to books more often if they could relate to characters similar to them. Just look at Harry Potter. It isn’t the magic or creatures that resonate with the millions—many books for kids have similar plots and setups. It is the characters. Harry, Ron, and Hermione weren’t the cool kids–not at first, anyway. Readers got to grow up with them, flaws and all. Dark Muse is no Potter, but I hope to reach kids who battle daily with problems of all kinds, whether they’re disabled or just having trouble fitting into that odd-shaped contraption that is our society.

 

My students are proof that success for all is possible if the dream is strong enough, and music (and other arts) give teens the opportunity to discover that they have amazing, magical powers. In fact, my favorite song, Triumph’s “Magic Power” is all about the power of music in young people’s lives. It’s a great song because it’s all about how music can cut through everything that’s going on.

 

I hope that in my future efforts I can continue to create characters based on those I’ve had the pleasure of working with, and develop unique ones that make readers feel they’re not alone in the halls and lunchrooms, at dances and sports, or in the dating scene. Of course, my characters just might have to survive in an even more twisted setting. I’m looking forward to revisiting the band many more times if readers enjoy them!

 

Posted on October 16, 2013 by , Reply
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